Saturday, April 7, 2012
Celebration!!
Marketing for Alexander Graham Cracker is HERE! I am so excited! The book won't officially be in the bookstores until July, but I get copies and can start with press releases, author signings (he-he), and working my niche markets. A lot of work is involved in this and pray God gives me the energy and the stamina to keep it up!
It was just a dream come true to receive the proofs and to see my work in final form. I cannot wait to get my copies in the mail. I even got a financial backer!! She will be going with me on some of the Author appearances and we are going to have such a great time? Can you guess who that is? My baby sister. What better partner could I possibly have on this journey?
Merry Go Round of SLE
I just read a very interesting article on Lupus and fatigue. Both my parents, my sister, and possible other members of our family have SLE. So do I. I think I must have had this disease for a long while. I remember hearing about friends in the 80's that were diagnosed and their prognosis was very bad.
I currently have a great doctor who is working with me, our journey has just begun together but at least she believes me. The fatigue is the one thing I have the hardest time coping with. I feel like the laziest person in the world. When I worked at a local retail store, cleaning, I only worked 3 days a week. I would have to come home and sleep at least 4 hours and was still in extreme pain. I stayed there from July to Feb. After that I just couldn't stand the exhaustion and pain any more and I really don't think anyone at the store believed how tired I was. It was also difficult for me to remember codes for the cash register.
I am working from home now, I have a book about to be published and am gathering energy to do the author appearances. The fatigue still isn't gone. Sometimes I need 12 hours of sleep. How crazy is that??? A person can't function socially or get chores done on 12 hours of sleep. At least my chosen profession of writer/illustrator can be done from a desk, couch, or bed. Yeah!
To complicate matters I also have spinal degenerative disease. I have already had to have a neck fusion and now it is bothering me in the lower back and legs. Some days I walk with a cane, some days I'm fine.
I am happy my husband understands but I know he gets frustrated with me. He is an RN and recognizes signs before I do when a flair is coming on.
My heart yearns to so much more than I do now, my spirit feels young and pain free - my body won't co-operate. So the good days are when I grab the golden ring from the merry go round. The bad days are when I miss it. I touched that ring today, but it slipped from my grasp.
I currently have a great doctor who is working with me, our journey has just begun together but at least she believes me. The fatigue is the one thing I have the hardest time coping with. I feel like the laziest person in the world. When I worked at a local retail store, cleaning, I only worked 3 days a week. I would have to come home and sleep at least 4 hours and was still in extreme pain. I stayed there from July to Feb. After that I just couldn't stand the exhaustion and pain any more and I really don't think anyone at the store believed how tired I was. It was also difficult for me to remember codes for the cash register.
I am working from home now, I have a book about to be published and am gathering energy to do the author appearances. The fatigue still isn't gone. Sometimes I need 12 hours of sleep. How crazy is that??? A person can't function socially or get chores done on 12 hours of sleep. At least my chosen profession of writer/illustrator can be done from a desk, couch, or bed. Yeah!
To complicate matters I also have spinal degenerative disease. I have already had to have a neck fusion and now it is bothering me in the lower back and legs. Some days I walk with a cane, some days I'm fine.
I am happy my husband understands but I know he gets frustrated with me. He is an RN and recognizes signs before I do when a flair is coming on.
My heart yearns to so much more than I do now, my spirit feels young and pain free - my body won't co-operate. So the good days are when I grab the golden ring from the merry go round. The bad days are when I miss it. I touched that ring today, but it slipped from my grasp.
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